Information for Patients
Information for Patients
Standard of Care
A brief overview of the standard of care for people with HPS by organ system as well as questions to discuss with your doctor.
Diagnosing HPS
Learn how HPS is accurately diagnosed and how to obtain testing.
Our member stories
Meet people affected by HPS and learn about their stories.
Newsroom
Read the latest headlines from the HPS Network, the HPS community and HPS science.
Patient Fact Sheets
What is Hermansky-Pudlak Syndrome?
Recipient Selection for Lung Transplantation
Pulmonary Exercise Training before and after Lung Transplantation
