Pulmonary Fibrosis Foundation
Pulmonary Fibrosis Foundation (PFF) is pleased to offer educational materials to members of the pulmonary fibrosis (PF) community and committed to providing disease education to the PF community, free of charge.
The Pulmonary Fibrosis Foundation’s educational materials are available as downloadable PDF files below. Please contact the PFF Help Center at 844.TalkPFF (844.825.5733) or help@pulmonaryfibrosis.org to order free hard copies
Preparing for a Lung Transplant: What to Expect
Lung transplant—surgery to remove a damaged or diseased lung and replace it with a healthy lung from a deceased donor—is a life-saving treatment for people with late-stage lung disease after other treatments have been exhausted. Learning about and preparing for lung transplant can be an overwhelming process. This booklet is designed to help PF patients considering lung transplant learn what’s involved and how to get started. Referral and transplantation criteria can vary by transplant center.
Life after Lung Transplant: What to Expect
Most patients who have a transplant due to the effects of pulmonary fibrosis breathe better, increase their activity, and can discontinue supplemental oxygen. Some people continue to work and travel. But even when surgery results are positive, life after a transplant has its own challenges. To maintain the best possible health and reduce the chance of complications, you’ll need to carefully follow your care team’s instructions throughout your life. This booklet provides an overview of what to expect.
Pulmonary Fibrosis Information Guide
The Pulmonary Fibrosis Foundation's Pulmonary Fibrosis Information Guide gives patients, caregivers, and medical professionals comprehensive information about pulmonary fibrosis, treatment options, tips for monitoring your health, and ways to maintain your care. This guide is ideal for those who are newly diagnosed or wish to learn more about this disease. Please note that the information provided in this guide is specific to standard practices and resources available within the United States.
ATS Patient Information Series
The ATS Patient Information Series is a public service of the American Thoracic Society and its journal the AJRCCM (www.atsjournals.org). The information appearing in this series is for educational purposes only and should not be used as a substitute for the medical advice of one's personal health care provider.
- What is Lung Transplantation?
- Lung Transplantation In Children
- Mindfulness for Those with COPD, Asthma, Lung Cancer, and Lung Transplantation
- Recipient Selection for Lung Transplantation
- Rejection after Lung Transplantation?
- Bronchiolitis Obliterans Syndrome (BOS) Following Lung Transplant
- Pulmonary Rehabilitation
- Oxygen Therapy
- Oxygen Therapy for Children
- Exercise with Lung Disease
- What Is Idiopathic Pulmonary Fibrosis?
- Medications for Idiopathic Pulmonary Fibrosis
- Nondrug Treatments for Idiopathic Pulmonary Fibrosis
